Affiliates:

The Rett Syndrome Research Trust
reverserett.org

The International Foundation for CDKL5 Research
www.cdkl5.com/

The Pitt Hopkins Research Foundation
pitthopkins.org/

Buckhead Urgent & Primary Care Clinic
urgentcareatlanta.com/

Other recommended resources:

www.ClinicalTrials.gov
rarediseases.org
www.CISCRP.org
www.patientslikeme.com
www.parentprojectmd.org
www.mda.org
www.jettfoundation.org
www.cureduchenne.org
CureSMA.org